| Record Type: |
Electronic resources
: monographic
|
| Secondary Intellectual Responsibility: |
HoffmanBeatrix Rebecca, |
| Secondary Intellectual Responsibility: |
Project Muse |
| Place of Publication: |
New Brunswick, N.J. |
| Published: |
Rutgers University Press; |
| Year of Publication: |
c2011 |
| Description: |
1 online resource (viii, 309 p.)ill. : |
| Series: |
Critical issues in health and medicine |
| Subject: |
Patient Advocacy - United States - |
| Subject: |
Health Policy - United States - |
| Subject: |
Health Care Reform - trends - United States - |
| Subject: |
Patient-Centered Care - trends - United States - |
| Subject: |
Medical policy - United States - |
| Subject: |
Patient advocacy - United States - |
| Online resource: |
http://muse.jhu.edu/books/9780813550855/ |
| Notes: |
Includes bibliographical references and index |
| ISBN: |
9780813550855electronic bk. |
| ISBN: |
9780813550503hbk. |
| ISBN: |
0813550505hbk. |
| ISBN: |
9780813550510pbk. |
| ISBN: |
0813550513pbk. |
| Content Note: |
Introduction : patients as policy actors / Nancy Tomes and Beatrix Hoffman -- Solitary advocates : the severely brain injured and their surrogates / Joseph Fins and Jennifer Hersh -- Physician-patient communication in the care of vulnerable populations : the patient's voice in interpersonal policy / M. Robin DiMatteo ... [et al.] -- Is it time to push yet? The challenges to advocacy in American childbirth / Elizabeth Mitchell Armstrong and Eugene DeClercq -- A pound of flesh : patient legal action for human research protections in the biotech age / Lori Andrews and Julie Burger -- From outsiders to insiders : the consumer/survivor movement and -- Its impact on American mental health policy / Nancy Tomes -- "Don't scream alone" : the health care activism of poor Americans in the 1970s / Beatrix Hoffman -- The canary in Gemeinschaft : using the public voice of patients to enhance health system performance / Mark Schlesinger -- Patient appeals as policy disputes : individual and collective action in managed care / Marc Rodwin -- The power of us : a new approach to advocacy for rare cancers / Amy Dockser Marcus -- Patients and the rise of the nurse practitioner profession / Julie Fairman -- A house on fire : newborn screening, parents' advocacy, and the discourse of urgency / Rachel Grob -- Measuring success : scientific, institutional, and cultural effects of patient advocacy / Steven Epstein |